Depending on how you are feeling, you may be able to carry on full-time, or you may need to adjust your working hours or work from home. If your GEP-NETs don’t cause symptoms, you should be able to carry on with life as normal.

You don’t have to discuss your condition with your employer, but, if you feel able to, it might be a good idea to let them know if you think your symptoms or treatment affect your work, or if you need to take time off to attend medical appointments. Some treatments for GEP-NETs can mean time off work, so it’s good to be upfront with your employer to manage time off when you need it.