You are not alone

How many people have acromegaly?

Acromegaly is classified as a rare condition, which means it affects less than 1 person in every 2,000.1 Worldwide, the number of people with acromegaly is thought to be between 28 and 133 patients for every 1 million people.2*

Every year, between 2 and 11 patients for every million people are diagnosed with acromegaly, that's between 16,000-86,000 people around the world.2*


  1. Rare Disease UK. What is a rare disease? Available at: Last accessed September 2020.
  2. Orphanet. Acromegaly. Available at Last accessed September 2020.
  3. NHS England. Acromegaly. Available at: Last accessed September 2020.